I'm new to this - blogging and Chiari malformation. Let me entertain you - I hope you'll find my posts interesting. If not, well such is life.
I'm 33. I was diagnosed with Arnold Chiari Malformation in July 2009 by sheer coincidence. I was referred to an ear nose and throat specialist for tinnitus in my left ear. Following an angio MRI of my brain a 6mm herniation of the cerebellar tonsils was found. The ENT said he could not be any assistance to me and recommended I see a neurosurgeon.
Fast forward to mid August. I had my first appointment with the local neurosurgeon. (Amazingly quick!) After reviewing my history and my MRI he had one solution - surgery. The decompression of my skull to be precise. And it's not that I don't trust doctors locally (and well, I don't) I asked my GP to refer me to a NS in Toronto who has more experience in this type of surgery. I got an appointment date the day after my referral was faxed down - I see the TO NS on October 26, 2009.
I've been reading lots of blogs, joined 2 support groups, and researching all kinds of sites on the web. I've met a few people online in Canada with Chiari too. I'm a sponge soaking everything up until my appointment in October.
I'm not a witty writer like some other Chiari patients. I'm not a pool of knowledge like others. I'm just here to be me and write about what I'm dealing with and how I'm feeling about it at that time.
Thanks for reading...