Monday, September 7, 2009

The Journey Begins

I'm new to this - blogging and Chiari malformation.  Let me entertain you - I hope you'll find my posts interesting.  If not, well such is life.

I'm 33.  I was diagnosed with Arnold Chiari Malformation in July 2009 by sheer coincidence.  I was referred to an ear nose and throat specialist for tinnitus in my left ear.  Following an angio MRI of my brain a 6mm herniation of the cerebellar tonsils was found.  The ENT said he could not be any assistance to me and recommended I see a neurosurgeon.

Fast forward to mid August.  I had my first appointment with the local neurosurgeon. (Amazingly quick!) After reviewing my history and my MRI he had one solution - surgery. The decompression of my skull to be precise.  And  it's not that I don't trust doctors locally (and well, I don't) I asked my GP to refer me to a NS in Toronto who has more experience in this type of surgery.  I got an appointment date the day after my referral was faxed down - I see the TO NS on October 26, 2009.

I've been reading lots of blogs, joined 2 support groups, and researching all kinds of sites on the web. I've met a few people online  in Canada with Chiari too.  I'm a sponge soaking everything up until my appointment in October.
I'm not a witty writer like some other Chiari patients.  I'm not a pool of knowledge like others.  I'm just here to be me and write about what I'm dealing with and how I'm feeling about it at that time.
Thanks for reading...

No comments:

Post a Comment