tag:blogger.com,1999:blog-6556372757919452506.post8868751695602411528..comments2016-05-12T09:40:43.190-04:00Comments on Cassandra and Chiari: Bucket ListCassandrahttp://www.blogger.com/profile/07739639894830434495noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6556372757919452506.post-35035403820840713452010-03-20T19:20:19.660-04:002010-03-20T19:20:19.660-04:00Thanks, Cassandra. I am seeing my NS in early Apr...Thanks, Cassandra. I am seeing my NS in early April. I went back to my GP and impressed urgent need, so he made some calls. Having a law background helps as working in Med Mal, I've seen so much and one must be reasonable and proactive, without being rude or demanding. Chiari is nothing to fool with!<br /><br />You'll have to ask personnel to have someone help you lug those minute books around or get a library cart. They aren't expensive and very helpful for anyone who has to cart around boxes or books. When I worked for a trial attorney years ago I wasn't the least bit sick but I got a library cart and it was great.<br /><br />Take care, Cassandra!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6556372757919452506.post-30848467382642915092010-03-14T20:23:28.168-04:002010-03-14T20:23:28.168-04:00Luisa,
Thanks for writing! Yes, it took me some t...Luisa,<br />Thanks for writing! Yes, it took me some time and a lot of reflection to decide. I looked back at journals I kept since 2006. And even before the diagnosis my health has declined. I understand the wait to get into drs in Ontario. It was almost a fluke I saw the NS here within 2 weeks of my referral! A miracle. Most waits are 6 to 8 months or longer up in the North. <br />I'm worried too about going back to work. I work in corporate law so lots of minute books to move and carry around - that worries me. I can barely lift anything now!!<br />I hope your NS is great. I know that TOW is a great hospital.<br />Keep in touch!Cassandrahttps://www.blogger.com/profile/07739639894830434495noreply@blogger.comtag:blogger.com,1999:blog-6556372757919452506.post-22654788434272788412010-03-12T15:33:59.513-05:002010-03-12T15:33:59.513-05:00Hi, Cassandra. I was diagnosed on Tuesday, March 9...Hi, Cassandra. I was diagnosed on Tuesday, March 9-10 with Type 1. I also live in Toronto and am referred to Dr. Wallace at Toronto Western. I am alo a legal assistant. LOL! Coincidence. Hey, I wish you all the best with your surgery. It's weird. I'm happy to have a diagnosis - makes sense all the symptoms I've had over the years - but dreading the aftermath of surgery. Will I be able to work, etc.! I won't be able to get in to see the doc until May, so right now waiting is the hard part.<br /><br />I see you waited almost a year from your diagnosis until surgery. Did your symptoms get worse in that year and was your doc able to help with that? I am starting to have trouble walking and hope I can get meds or therapy for that.<br /><br />Take care, Cassandra. All my best.<br /><br />LuisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6556372757919452506.post-27146011042309741992010-03-10T22:00:06.656-05:002010-03-10T22:00:06.656-05:00Hi Jess! Welcome to the Chiari world. Sorry you h...Hi Jess! Welcome to the Chiari world. Sorry you had to join us :( I do very very gentle yoga - the class I take is called Relax, Yoga and Meditation. We focus on centering and breathing, 6 or 7 poses - the most difficult would be Warrior 2 or 5 Pointed Star. NO strenuous poses - I can't do them. I was doing more at another yoga studio but I found I had a headache often after Downward Dog or Sun Salutes. Not worth hurting myself. There are 2 great boards I belong to for Chiari - one on Yahoo Groups the other on Facebook. There are lots of resources and help on both. Good luck, any questions, please ask!!Cassandrahttps://www.blogger.com/profile/07739639894830434495noreply@blogger.comtag:blogger.com,1999:blog-6556372757919452506.post-82140700317298706492010-03-10T09:09:45.786-05:002010-03-10T09:09:45.786-05:00Hi Cassandra,
I am a new reader, I found your pos...Hi Cassandra,<br /><br />I am a new reader, I found your post while searching Chiari... It is all new to me as I was just diagnosed on Monday. Are you still fully able to do yoga? I was a very active person but am finding it way to painful to go to the gym or hike, both I really enjoy. Not sure what I should do!Jess2Impresshttps://www.blogger.com/profile/12688564855911591485noreply@blogger.com